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The following third-party Web sites contain information about blood diseases and related disorders. The American Society of Hematology (ASH) provides this list of Web sites as a service to the public. ASH does not endorse any of the linked sites and is not responsible for the content of external Web sites.
View resources by topic:
Blood Donation
American Red Cross
The American Red Cross is dedicated to saving lives and helping people prevent, prepare for, and respond to emergencies. The Red Cross is the largest supplier of blood and blood products to more than 3,000 hospitals across the nation and also assists victims of international disasters and conflicts at locations worldwide. This Web site provides information on blood donation, blood safety, and volunteer opportunities, and includes AIDS/HIV resources and news updates. This site also provides information in Spanish.
American Association of Blood Banks
The AABB is an international association of blood banks, including hospital and community blood centers, transfusion and transplantation services, and individuals involved in activities related to transfusion and transplantation medicine. The organization is dedicated to encouraging the voluntary donation of blood and other tissues and organs through education, public information, and research. This Web site provides news updates; detailed information about blood, blood banking, and blood diseases; a search function for locations to donate or receive blood; information on professional development opportunities; and an archive of AABB newsletters.
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Blood Tests
Lab Tests Online
Lab Tests Online is the product of collaboration between several professional societies representing the lab community, including ASH. Lab Tests Online is an online resource for physicians and patients to help in the understanding of clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.
Medline Plus: Laboratory Tests
The National Library of Medicine, the world's largest medical library, provides MedlinePlus, an online a resource of complete and up-to-date health information for both medical professionals and the general public. The Laboratory Tests page provides a variety of information on common blood tests, as well as tests for specific conditions.
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Bone Marrow and Stem Cell Transplantation
National Marrow Donor Program
The National Marrow Donor Program facilitates blood stem cell transplants for patients who do not have a donor in their family, and manages the world's largest registry of volunteer stem cell donors and cord blood units. NMDP works to increase access to transplantation through research, advocacy, and public and professional education. This Web site provides information about bone marrow and blood product donations; inspiring real life stories; resources and topics of interest to patients afflicted with a disease that can be treated by a transplant; in-depth information for medical professionals; a news and events section; and a directory of U.S. and international transplant and donor centers. This site also provides information in Spanish, Korean, Tagalog, Chinese, and Vietnamese.
The Center for International Blood and Marrow Transplant Research
The International Bone Marrow Transplant Registry, collecting patient data on allogeneic blood and marrow transplants worldwide, and the Autologous Blood and Marrow Transplant Registry, collecting patient data on autologous blood and marrow transplants performed in North and South America , both strive, through their research, to improve the results of blood and bone marrow transplants. This Web site provides a directory of transplant centers, issues of the IBMTR/ABMTR newsletter, meeting information, a basic introduction to blood and marrow transplantation, and a listing of related publications and Web sites.
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Cancer
National Cancer Institute
NCI is the federal government's principal agency for cancer research and training and is an important organization for health information dissemination and other programs with respect to cancer and the care of cancer patients and their families. This Web site provides a wide variety of information for patients and health professionals on the prevention, causes, and treatment of all types of cancer. Other features include a dictionary of related terms, a listing of funding opportunities for researchers, a calendar of cancer-related scientific meetings and events, a search tool for clinical trials, an index of cancer statistics, and postings of major news releases. This site also provides information in Spanish.
American Society of Clinical Oncology: Cancer.Net
Cancer.Net, the patient information Web site of the American Society of Clinical Oncology, provides information on more than 50 types of cancer, related treatments and their side effects, a section for patients and their families on coping with cancer, and clinical trial information. Additional resources include a Find an Oncologist feature, a gallery of medical illustrations, message boards, and a drug database.
National Comprehensive Cancer Network
The National Comprehensive Cancer Network, an alliance of 19 of the world's leading cancer centers, is a source of information to help patients and health professionals make informed decisions about cancer care. NCCN's complete spectrum of programs emphasizes improving the quality, effectiveness, and efficiency of oncology practice. This Web site provides clinical practice guidelines in oncology, treatment guidelines for patients (also available in Spanish), a clinical trials network, details on educational conferences and symposia for clinicians, and a physician directory.
Links that may be of particular interest include:
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Clinical Trials
ASH's Guide to Clinical Trials
ClinicalTrials.gov
This Web site provides updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov furnishes information about a trial's purpose, who may participate, locations, and contact information for more details.
Cancer.gov: Clinical Trials
This Web site provides a search engine by which you can locate U.S. clinical trials by type of cancer. The site also provides educational materials for patients, includes recent developments in clinical trials, and furnishes guidelines and information for researchers on conducting clinical trials. This information is also available in Spanish.
CenterWatch Clinical Trials Listing Service
CenterWatch is dedicated to providing patients and their advocates with a variety of information services about clinical research. This Web site provides an extensive list of clinical trials being conducted internationally, includes a link to search for information on a specific drug, lists promising therapies newly approved by the Food and Drug Administration, supplies an online patient bookstore, furnishes a listing of health associations, and provides a general introduction for patients on clinical research.
Cancer and Leukemia Group B
CALGB is a national clinical research group, sponsored by the National Cancer Institute, dedicated to bringing together clinical oncologists and laboratory investigators to develop better treatments for cancer. CALGB research is focused on seven major disease areas: leukemia, lymphoma, breast cancer, lung cancer, gastrointestinal malignancies, genito-urinary malignancies, and melanoma. This Web site provides general clinical trial information, links for finding clinical trials, listings of meetings, and cancer research updates.
Eastern Cooperative Oncology Group
ECOG is one of the largest clinical cancer research organizations in the United States and conducts clinical trials on all types of adult cancers. This Web site provides introductory information on clinical trials, supplies a publications search engine, furnishes a directory of ECOG institutions, and includes a medical glossary.
Southwest Oncology Group
The Southwest Oncology Group is an adult cancer clinical trials organization, one of the largest in the world. The Web site provides a search function for clinical trials by drug or type of cancer, an archive of the organization's newsletter, and meeting and training information.
Children's Oncology Group
COG's mission is to cure and prevent childhood and adolescent cancer through scientific discovery and compassionate care. This Web site provides a search function for clinical trials, educational and support resources for children and their families coping with cancer, long-term follow-up guidelines for cancer survivors, and a directory for finding local, national, and international cancer organizations.
North Central Cancer Treatment Group
The NCCTG is a clinical research group, sponsored by the National Cancer Institute, which specializes in researching methods of treating and preventing cancer, and in researching methods to alleviate the side effects of cancer and cancer treatments. NCCTG consists of a network of cancer specialists at community clinics, hospitals, and medical centers in the United States, Canada, and Mexico. This Web site provides general information about clinical trials, furnishes clinical trials listings, contains NCCTG news releases, and includes information on patient advocacy.
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Genetics
Human Genome Project
The Human Genome Project is an international effort, formally begun in 1990, to determine the complete sequence of the 3 billion DNA subunits, identify all human genes, and make them accessible for further biological study. Some 18 countries have participated in the HGP. The Department of Energy's Human Genome Program and the National Institutes of Health's National Human Genome Research Institute together make up the U.S. Human Genome Project. This Web site provides various Internet tools that can be used to investigate genetic disorders, chromosomes, genome maps, genes, sequence data, genetic variants, and molecular structures.
Links that may be of particular interest include:
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National Organizations
National Heart, Lung, and Blood Institute
NHLBI provides leadership for a national program in diseases of the heart, blood vessels, lungs, and blood; blood resources; and sleep disorders. The Institute supports and conducts research in these areas, supports training and career development of researchers, and conducts educational activities, including development and dissemination of materials, on these topics. The NHLBI Web site contains a variety of health information and publications for patients and health professionals, provides resources for researchers, includes clinical trial information, and offers a news and events center.
Links that may be of particular interest include:
National Cancer Institute
NCI is the federal government's principal agency for cancer research and training and is an important organization for health information dissemination and other programs with respect to cancer and the care of cancer patients and their families. This Web site provides a wide variety of information for patients and health professionals on the prevention, causes, and treatment of all types of cancer. Other features include a dictionary of related terms, a listing of funding opportunities for researchers, a calendar of cancer-related scientific meetings and events, a search tool for clinical trials, an index of cancer statistics, and postings of major news releases. This site also provides information in Spanish.
NCI: Inherited Bone Marrow Failure Syndromes
This Web site provides detailed information about inherited bone marrow failure syndromes (IBMFS), diseases of the blood and bone marrow that are also associated with a high risk of cancer. The site primarily provides information about a study sponsored by the National Cancer Institute on IBMFS, but also provides detailed descriptions of these disorders, information on gene mutation, a list of useful links, and a glossary of related terms.
National Institute of Diabetes and Digestive and Kidney Diseases
NIDDK conducts and supports research on many of the most serious diseases affecting public health. The Institute supports much of the clinical research on the diseases of internal medicine and related subspecialty fields as well as many basic science disciplines. This Web site provides a news archive; event, conference, and workshop details; research resources and clinical trial information; training, career development, and funding opportunities for researchers; reports to Congress and testimony; health information for patients; and links to National Education Programs.
National Comprehensive Cancer Network
The National Comprehensive Cancer Network, an alliance of 19 of the world's leading cancer centers, is a source of information to help patients and health professionals make informed decisions about cancer care. NCCN's complete spectrum of programs emphasizes improving the quality, effectiveness, and efficiency of oncology practice. This Web site provides clinical practice guidelines in oncology, treatment guidelines for patients (also available in Spanish), a clinical trials network, details on educational conferences and symposia for clinicians, and a physician directory.
Links that may be of particular interest include:
Medline Plus
The National Library of Medicine, the world's largest medical library, provides MedlinePlus, an online a resource of complete and up-to-date health information for medical professionals and the general public. MedlinePlus collects this information from the National Institutes of Health and other sources on over 650 diseases and conditions. This Web site provides directories of hospitals and physicians, a medical dictionary and encyclopedia, extensive drug information, current health news, links to clinical trials, and educational materials, including interactive tutorials for patients on a variety of topics. Information is also provided in Spanish.
Links that may be of particular interest include:
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