ASH submitted comments today to the National Heart, Lung, and Blood Institute (NHLBI) and the National Cancer Institute (NCI) in response to the request for information on "Building a National Resource to Study Myelodysplastic Syndromes (MDS) – The MDS Cohort Natural History Study (NOT-HL-12-147)." MDS represents an important disorder for scientific focus given its epidemiologic link to senescence, its significance as a pre-leukemia model, and its relevance to stem cell biology. With the aging of a large segment of the American population who are at emerging risk for these disorders, the advancement of research and treatment of MDS is one of the Society's priorities.
In its comments, ASH applauds NHLBI and NCI for their efforts to build a national resource to better understand MDS disease progression, urges the NIH to have a "home" for MDS within its structure, and lists several important scientific questions and research priorities that the proposed MDS Cohort Natural History Study should answer.
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